UCSD Fluoroquinolone Effects Study
“We are currently recruiting 10,000 participants for this study who meet either of the 2 following criteria:
Users of fluoroquinolone antibiotics who believe that they have experienced side effects during use and/or after cessation.
Users of fluoroquinolones antibiotics who believe that they have tolerated them without experiencing side effects or any adverse effects.
If you know of others who have experienced what they believe was an adverse reaction tied to fluoroquinolones, consider sharing your knowledge about this study with them and asking if they would contribute their experience.
We are always looking for control subjects who have taken fluoroquinolone antibiotics and believe that they have not experienced any adverse effects. Even if you experienced adverse effects, please consider having your friends and family fill out surveys so we may understand predisposing risk factors.
We currently expect the questionnaires to be available through 2017.”
The following publication is by the same UCSD researcher doing the above study:
FQ Adverse Effects BMJ 2015 Case Reports Fluoroquinolone-Induced Serious, Persistent, Multisymptom Adverse Effects. Golomb BA, et al. BMJ Case Rep 2015. doi:10.1136/bcr-2015-209821
Leucine Health Sciences Fluoroquinolone Antibiotic Side Effects Survey
Links: Lucine Health Sciences Fluoroquinolone Antibiotic Side Effects Survey. The introductory information to this survey is here.
For anyone who has ever taken a fluoroquinolone antibiotic, whether or not you’ve had an adverse reaction, please take the time to fill out this survey.
Data is desperately needed on this devastating toxicity. You can help, whether you have experienced these reactions or not. Data collection will continue until funding is available for results analysis and publication.
ME/CFS Genes Study
Link: Update June 2017: ME/CFS and Genetic Study. If you suffer from FQ-Induced ME/CFS, and have done 23andMe genetic testing, you may be able to participate in this study. As always, healthy controls are also needed.
Quinolone Vigilance Foundation Research Projects
Link: QVF Research Projects page. List of FQ research on Quinolone Vigilance Foundation (saferpills.org) website. These projects may or may not be requesting patient participation; this list is for informative purposes.