Why I Did — And Did Not — Want to Write This Up

In case you’re not aware of this already from the “Welcome” or “Introduction” page, I’ll state up front again that I am far from 100% recovered.  I don’t consider myself a “success story”.  At this point in time, I consider myself a chronic, long term, flox victim.  And understandably, most of us want to hear from the successes, not the failures.  Just for this reason alone, I wondered if anything I would have to offer would be useful, or even, quite frankly, if I had a right to post what  I had learned.  After all, we all want a “fix”, someone to give us the answers, and unfortunately, that’s something I don’t have to offer.

Having said that though, it’s also true that I’ve been “up and down” a few times – from plunging down to the depths of total incapacitation and hell to back to riding my bike and swimming — and several states in between.  I believe we often learn as much or more from our mistakes as our successes, and I believe there’s a chance that a couple of my “plunges” were self induced due to mistakes I made.   There’s the chance that perhaps I could have avoided some of the worst of my symptoms, or possibly even have recovered, had I known then what I know now.  So if nothing else, it may be worth reviewing some of this information to consider if it is pertinent to your own case, especially to the newly floxed.

So the reasons I vacillated quite a bit in providing these write ups include:

  • I did not find “The Right Answers”, “The Cure”, or “The Treatment”.
  • My interpretations of my experiences could be wrong.
  • My experiences and interpretations change over time, making this a work in progress.
  • TH/Iodine metabolism, as well as endocrinology and neuro-endocrinology in general, are extremely complicated all around. It’s extremely difficult to provide useful information in sound bites or brief, simplistic descriptions that every audience can understand.
  • I’m a flox victim. I’m on Year 5 and I’m tired of being a flox victim. I’m particularly tired of these debilitating CNS symptoms, which contribute to lack of motivation, discouragement, anger, depression, and . . . well, enough said. If you’re a flox victim, you understand. I’ve got thousands of pages of notes and write ups, but putting it together in some kind of coherent, abbreviated, and ultimately useful, fashion feels monumental.

On the other hand, there is a part of me that kept pushing me to at least put some information about my experience out there for the following reasons:

  • Over the years, I have read, and ultimately benefitted from, reading other websites, forums, and stories from thousands of other flox victims posted on the internet. Every flox victim who has taken the time and energy to provide their story, however long or brief, in whatever format, contributes to increased exposure and awareness of this toxicity. Although I’ve provided bits and pieces of my own story via commentaries over the past several years, I haven’t provided any information on what I’ve learned about how TH/Iodine affected my floxing symptoms. This website is my attempt to do so in an attempt to make a contribution to this particular facet of the floxing syndrome.
  • The old saying “If my story only helps one person, then maybe it will be worth it” is applicable here.
  • Over the years, I felt as if I noticed a significant number of flox victims who were diagnosed with thyroid conditions, both pre and post floxing. Despite this, there is little to nothing written or published, either by lay people or researchers, on this potential relationship. If nothing else, perhaps my experience and information might open the door to generating more discussion and questions about this possibility, and inspire further research into this potential connection by FQT, thyroid, and endocrine researchers in general.
  • If FQT was a thousand piece puzzle, then perhaps I’ve been able to add a piece or two, which may in turn help others to add their own piece or two . . . and so on.

 

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