What to Do?

 

My guess is most people will head to this section first.  That’s what I would do.  When I first was floxed, I wanted answers, and fast.  Unfortunately, as I’ve said elsewhere in this document, I didn’t find “the answer”, cure, antidote, or treatment for getting floxed.  I am five years out now, and I am not recovered.   I wish I had found the answer, not only for myself, but for others as well.  So if you’ve come to this section first in the hopes I have answers for you and everyone else, I’m very sorry that I don’t.

If you are newly floxed, please remember that people do recover from this toxicity, and that it’s important to have hope.    So just because I didn’t find the answer for me, doesn’t mean you won’t find an answer for you.    And although I didn’t recover to my pre-flox status, I did find some things along my journey that helped me to keep going, which I will discuss in the following sections.

I don’t know if what I’ve done will help you.  But in a nutshell, here is what helped me and has kept me going this long:

  1. I supported the physiological and psychological lows (“hypo” state) with a replacement dose of thyroid hormone medication, and
  2. Limited the physiological and psychological highs (“hyper” state) with a low iodine diet and using supplements which bind up T3/T4 sparingly, only on an as needed basis.

Be aware that for me, the “hypo” and “hyper” states had nothing to do with serum values.  I am defining them by my symptoms alone.  I had all the anti-thyroid antibodies, which were complicating and exacerbating any TH homeostasis my body was attempting to maintain.  I also was a flox victim, which meant I had additional mechanisms of damage to contend with, but which did seem to interact heavily with TH.

For the most part, I probably don’t have any new advice here that you can’t get elsewhere about thyroid health and attempts at flox recovery.  Despite my incredible verbosity, the sections about thyroid hormone medication and dietary considerations/supplements will probably be the shortest ones with the least information.  Despite thousands of research papers read and everything I’ve learned, I don’t know what will work for everyone any more than anyone else does.  If there’s anything I learned on this journey, it’s how much I don’t know, and how much researchers and medical professionals don’t know either when it comes to thyroid-related problems.

For people who have been floxed and already have a basic understanding of the thyroid axis, I think I do provide some interesting and thought provoking new information throughout this “Book” and document.  And hopefully at least some of this information will be helpful to some or many thyroid patients and flox victims.  So I think it’s worth reading the website information for those reasons alone.   Although I didn’t find any answers that would guarantee recovery for everyone, here I discuss the following three topics:

  1. Testing: I’m big on lab testing, so this is the longest section. If there’s one thing I learned how to do in the past five years, it’s lab testing, either with my doctor’s help or without. So if nothing else, I can tell you how to do that. I know many patients aren’t interested in this topic, so feel free to skip it if that’s the case. I can say that at this point in time that I can’t even imagine paying money to go to a doctor to beg them to run simple blood, urine, and saliva tests that I can simply run on my own. So I go into some detail as to how you can do that too.
  1. Dietary considerations/Supplements: There is a lot of information on the internet already about both these topics for both flox victims and thyroid patients. Here, I will cover just a few of my own thoughts.   Probably the one that would be of most interest to flox victims is how to use a trial of specific supplements to see if some of the more severe CNS and neurological symptoms might be helped, especially during the acute phase of floxing or during thyrotoxic flares.
  1. Thyroid hormone medication: Again, there is a lot of information already available on the internet about numerous approaches to thyroid axis treatment. Here, I cover the basics of medication.  What may be of interest to some people are a few “patterns” in serum values of TH to look for when thinking about using supplements or medication.  I also provide a brief discussion of cortisol.

 

 

Table Of Contents